Meet the contributors

Our Care Column contributors are a very special part of the Together in SMA community

Spinal muscular atrophy Caregiver

Dany S.

Mom

Dany is the mother of 2 children with spinal muscular atrophy (SMA): 2-year-old Landon and 5-year-old Ruby. She lives in Wisconsin with her children, husband Terence, and mother Margie.

Read her stories

Spinal muscular atrophy Caregiver

Edmund L.

Dad

Edmund lives in Illinois with his wife, Kim. Their daughter, Angie, was diagnosed with SMA at 15 months.

READ HIS STORIES

spinal muscular atrophy writer

Angie L.

Student

Angie is an 18-year-old student living with Type II SMA. She is from Illinois and is studying English at a university in California.

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Spinal muscular atrophy Caregiver

Erika R.

Mom

Erika lives in California with her husband, Steven, and 2 children, Riley and Logan. Logan was diagnosed with SMA at 20 months.

Read her stories

spinal muscular atrophy writer

Kate V.

Mom

Kate lives in Wisconsin with her fiancé, David; her daughter, Leah; and their cat, Hunter. Leah, 11, was diagnosed with SMA at 14 months.

Read her stories

Spinal muscular atrophy Caregiver

Ashley B.

Mom

Ashley lives on a farm in Wisconsin with her husband Darren and 4 daughters: twin 5-year-old daughters Natalie and Jaena, 3-year-old Collins, and 1-year-old Heidi. Collins was diagnosed with Type II SMA at 8 months.

READ HER STORIES

spinal muscular atrophy writer

Keyrin D.

Student

Keyrin is a 17-year-old high school student from Los Angeles, California, who lives with Type 2 SMA. Her aspirations include going to the University of California, Berkeley and becoming a scientific journalist.

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spinal muscular atrophy writer

Liz B.

Mom

Liz is the mom of a Type I/II SMA angel. She is a project management and marketing consultant who lives in Southern California with her husband, Jim, and their 2 unaffected children (ages 10 and 18) and 3 dogs.

Read her stories

The people featured on this website are part of Together in SMA, which is sponsored by Biogen. Biogen compensates these contributors for their time and the content they provide.