Dany is the mother of 2 children with spinal muscular atrophy: 2-year-old Landon and 5-year-old Ruby. She lives in Wisconsin with her children, husband Terence, and mother Margie. Their extended family includes their dog, Max, and betta fish, Gooey. Terence and Dany are both “foodies” and love to get out to try new restaurants. They like to travel, especially with the kids, who are great road trippers.
When we had our daughter, Ruby, like many first-time parents, we had so many dreams for her. And they all involved her exploring the world, finding what she loves to do, and learning all she can about it. Enter SMA.
I can barely remember life before I worried about SMA. But perhaps what has been even more difficult for me has been the loss of the option to be able to just up and decide one day that we want to add to our family without fear or hesitation.
I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.
When was the last time you did something just for yourself? Something that really gave you a few moments (at least) to refresh your energy and focus on something other than your child(ren)?