Lisa is 55 years old and has Type 3 SMA. She was born and raised in Brooklyn, NY, where she worked as a speech and language therapist. She is the author of 4 educational children’s books. Lisa currently lives in Pennsylvania with her husband. Her children and grandchildren live nearby and visit often. She is currently writing her memoirs of life with SMA.

"Sometimes you don’t realize your own strength
until you come face to face with your greatest

Posts by Lisa

Finding work-life balance

For the first 20 years of my life, I was oblivious to what SMA was. At a young age, I realized that I was different and wondered why my body failed me. I was in college earning an Associate’s degree with plans to go on to obtain my Bachelor’s when I got my diagnosis.

Navigating the train

I grew up in Brooklyn. My first job was in an office in Manhattan. The trip to the train station meant that I had to walk one block and one long avenue to get to the train, then I had the arduous task of climbing 3 flights of stairs to get to the elevated platform.